Comments for La Fabuleuse Boulangerie d'Amelie

Comment on IIH, it’s not HII backwards… by chris

chris — Tue, 25 Aug 2009 09:16:35 +0000

Hi, My wife is currently going through a very similar thing. Initially she was treatd for Chronic Cluster headaches for 8 years. The only drug that worked for her was lithium. It was aparently the Lithium that caused the raised intercranial pressure. Her Lumbar puncture prssure was initially 42 and she was loosing some vision as wel as having a high pressure headache. Numerous lumbar punctures and 6 weeks later, the pressure keeps rising despite being on a mix of Diamox and topiratate and being off the Lithium. She’s now looking at a shunt I think and on top of that, can’t take the Lithium any more for her cluster headaches so they’ll come back. Although scary, the shunt should mean no mre LP’s at least. Cluster headaches are different things all together but just her bad luck to get both. worth a look at Cluster info on the net if anyone wants to cheer themselves up. It’s terrifying reading.

Comment on to clyde by beaverboosh

beaverboosh — Sun, 31 May 2009 08:57:38 +0000

asparagus makes you pee pee smell funny

Comment on IIH, it’s not HII backwards… by Ex Girlfiend

Ex Girlfiend — Thu, 09 Apr 2009 08:25:34 +0000

I can tell that this is not the first time you mention this topic. Why have you chosen it again?

Comment on i’m leaving you by GµårÐïåñ

GµårÐïåñ — Tue, 31 Mar 2009 03:18:17 +0000

This was very nice. I could actually associate with this in a weird way. Needless to say, loved reading it, thanks.

Comment on Ash Wednesday. by Amelie

Amelie — Tue, 31 Mar 2009 01:42:39 +0000

thank you for the beautiful comment! i’m so happy to see that there are other people out there who “get” what i was trying to express with that post. have a wonderful easter!

Comment on Ash Wednesday. by dinainsuburbia

dinainsuburbia — Thu, 26 Mar 2009 17:26:44 +0000

Wow… came to your blog by searching “catholicism” and I have to say what you wrote is beautiful. As a practicing Catholic, I belive that Jesus IS a friend and that guy you’d take pottery classes with… I think the beauty of the Catholic faith is that with all the tradition and all the history, we are taught that his message is simply- hey, love each other, like I love you.

Just like you saw Him among “us” Ash Wednesday, I see Him in you- in your writing of this beautiful post.

God Bless.

Comment on IIH, it’s not HII backwards… by Amelie

Amelie — Tue, 24 Mar 2009 02:39:17 +0000

Kristin,

It’s amazing how these sudden health issues can pop up out of nowhere. One day I thought I had a sinus infection a few days later I’m wedged in an MRI machine then having a needle jammed in my spine. Thankfully my images were all clear, but the spinal fluid pressure is high and still causing papilladema and mild tinnitus (which I find to be the most annoying of all the symptoms). My doctors have encouraged me to lose as much weight as possible ASAP (they don’t know why, but they have noticed that there is a correlation between weightloss and PTC remission) so now I’m full of spinal fluid, starving, and the Diamox makes diet coke taste awful — which means I’m deprived of caffeine. Wah. I hope your condition improves, there is a GREAT group of people in the PTC support group at http://dailystrength.org … and check out the IHRF if you haven’t already.

Comment on IIH, it’s not HII backwards… by Kristin

Kristin — Sat, 21 Mar 2009 08:52:34 +0000

Wow, your story is so similar to mine! I’m 26 years old and have had chronic intolerable headaches for years. I’ve discussed them repeatedly with my GP who consistently wrote them off to my high-stress job, and my crazy hectic home life (I’m living with my “man”, and my two girls, a disabled 4-year old, and a 2 year old). So I’ve lived with these headaches for a while. Then, within the last 4-5 months, I’ve been losing patches of my vision to gray areas, and geometric flashes of light. I thought for sure I it was due to eye strain from looking at my computer all the time, and the constant night driving that I do for work. So, I figured I needed to get some glasses. I made an appointment at my local optometrist, and decided to go with the “Optomap” option as part of my comprehensive eye exam (basically, its where the optometrist takes a picture of your retinas digitally instead of dilating your eyes, well worth the extra $29 in my opinion). Before looking at my pictures, we completed the typical eye exam tests, ie. read line 1, line 2 bla bla. Then we looked at my Optomap results. As soon as the images came up on his screen, the doctor said, “This is definitely not normal”. He pointed out my bulging discs that are attached to my optic nerves. He showed me where the tiny veins attached to the discs were hemorraging. He immediately said, “This is papilledema, this could be a brain tumor”. Freak me the hell out, why dontcha! I came in thinking I needed glasses (which I don’t need at all, ironically), and found out I could be looking at a brain tumor? What the?! I was immediately sent to my GP. He yelled on the phone to his associates that I needed to see an Opthomologist NOW as my blood pressure was up to 148/94 and I had a fever of 100.7 (completely fear induced). I was sent over to an Eye Institute that has an Urgent department where they conducted all sorts of tests. They scheduled for an MRI for early the next morning. So in one stupid day, I went to three doctors who confirmed my papilledema diagnosis, but no one could tell me what was going on, or why it was happening. The next day, the MRI concluded that my papilledema is due to pseudotumorous cerebri (two cysts found, one on each side of my brain), and an increase in cerebro-spinal fluid. I went and saw a neurologist the day after who has placed me on a prescription medication to attempt to decrease the pressure in my brain. (Apparently, once you start seeing visual effects, you’re prtty far gone and close to losing your sight). I get my spinal tap next week during which they will be draining off an extra 30 ccs of spinal fluid. Then, I get to go back to the opthomologist to get the discs that are attached to my optic nerves punctured to keep the fluid flowing there too. (Weeeeeee!) If my meds aren’t effective enough to keep those fluid levels down, I will have to continue to get frequent spinal taps to keep draining off the excess. Worst case scenario, I’m looking at getting a shunt placed (which I’m totally terrified of, thats actual freakin brain surgery! I’m only 26!). Its been a whirlwind this week, that’s for sure. I look forward to hearing about your progress! If you have any tips or tricks, I would love to hear them as I’m wigging out over this whole thing! Thanks for your post!

Comment on IIH, it’s not HII backwards… by GµårÐïåñ

GµårÐïåñ — Thu, 19 Mar 2009 01:51:48 +0000

It’s been a while. Good to hear from you. How have you been?

Comment on what were you singing? by Amelie

Amelie — Wed, 18 Feb 2009 03:53:57 +0000

Your response ended up in limbo (spam filter) but finding it tonight made me smile. I like the idea of someone anonymous stumbling across this blog in the throws of “Baby Come Back” … you’re welcome anytime.